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New race director and I need help.   Message List  
Reply | Forward Message #1259 of 1315 |
Hi everyone,
My daughter was recently diagnosed with a rare genetic disorder called
Prader-Willi syndrome. Although PWS impacts my daughters life in many ways, the
biggest side effect is the potential for obesity.

I have been an avid runner most of my life and I am currently working on hosting
a race at Otsinango Park in May as an awareness and fundraising event for the
Foundation for Prader-Willi Research.

I am hoping that the TCRC will be able to assist me with this event as this is
my first time planning an event of this nature.

Wondering if I could talk to someone about how TCRC might be helpful.


Thanks everyone,

Rachel Johnson




Sun Oct 18, 2009 2:32 am

raj70308
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Message #1259 of 1315 |
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Hi everyone, My daughter was recently diagnosed with a rare genetic disorder called Prader-Willi syndrome. Although PWS impacts my daughters life in many ways,...
Rachel
raj70308
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Oct 18, 2009
2:32 am
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